Publications & Products
The Hydrocephalus Association produces a wide assortment of publications and products to help you learn about—and live with—hydrocephalus.
All of the booklets and fact sheets published by the Association are available here for you to download. If you are unable to open the PDF files from the links provided below, we will be happy to mail them to you. Please email your request.
Publications
The Association publishes a quarterly newsletter highlighting developments within our community.
We also publish booklets and fact sheets addressing specific issues.
Our online physician directories provide contact information for neurosurgeons and neurologists who treat hydrocephalus.
To help you prepare for an initial appointment we have put together lists of questions for your doctor.
Products
DVD
A DVD for families of children affected by hydrocephalus was created by Association members and film producers Mark and Mara. Copies of "A Family's Guide to Hydrocephalus," a 40-minute DVD viewable in English or Spanish, can be purchased for $15 or complimentary with a $100 membership. For your convenience, you can order the DVD online, call (888) 598-3789, or send us an email.
Order our DVD online:
Boozle the Hydro Bear
Boozle bear, a teddy bear with a shunt, was developed by Dory Kranz and Sarah Zadorozynj of the Hydrocephalus Association. Boozle serves as a teaching tool for doctors, nurses, parents and children. Anyone can easily perform “surgery” on Boozle with an actual shunt inserted from the head to the abdomen. Although Boozle was just recently introduced, the Association has already received amazing reviews from medical professionals, parents and children.
To order Boozle, call (888) 598-3789 or send an email.
Awareness Pins
The Hydrocephalus Association's "Awareness Pins", made from shunt tubing, come attached to a card that outlines a few key statistics about hydrocephalus. You can raise awareness by giving these pins to family, friends, even your government representatives. A set of 10 pins, with informative cards, can be purchased for $30. We make each pin by hand, so please be patient if it takes us a little time to fill your order.
To order pins, call (888) 598-3789 or send an email.
Other Products
Please note that the Hydrocephalus Association also receives support from the sale of a variety of products, including items sold through eBay Giving Works. Please click here for more information.